Advocacy

One Blood. One Family.

One of the main directives of TCBD is to support and encourage legislative advocacy for the bleeding disorders community. By actively meeting with and writing to our state and federal legislators, we can bring the important aspects that affect our community to the attention of our representatives. It takes the effort of each of us in our community to make our “voice” loud enough.

Washington Days

Each March, advocates from across the country join the National Bleeding Disorders Foundation (NBDF) for its annual Washington Days.

National Bleeding Disorders Foundation's (NBDF) Washington Days is an annual advocacy event where people affected by bleeding disorders meet with lawmakers in Washington, D.C. to push for policies supporting patient access to care, research funding, and affordable treatments, transforming personal stories into powerful advocacy for critical healthcare issues.

This event allows you to share your story with your elected officials and their staff while also asking for them to support federal policies that are important to our community.

We focus on access to affordable, quality treatments and healthcare that meet the needs of the bleeding disorders community at the federal level.

Texas Central Bleeding Disorders is a member of the Texas Bleeding Disorders Advocacy Coalition (TXBDC). We advocate at the state and federal level on issues important to the bleeding disorders community. The Coalition is a joint effort of the Lone Star Chapter and Texas Central Bleeding Disorders.

To find out who represents you, please go to: http://www.fyi.legis.state.tx.us/Home.aspx.

Learn More About the Coalition Here

Learn More About Washington Days

Please reach out to Julie Jones at julie@texcen.org, if you are located in the Northern part of Texas, and are interested in participating in either Advocacy Days.

Please reach out to Melissa Compton at mcompton@lonestarbleedingdisorders.org, if you are located in the Southern part of Texas, and are interested in participating in either Advocacy Days.

Get Registered to Vote

Telling YOUR story...some ideas of things to share

(From NBDF's Washington Days)

How were you diagnosed?
what is the name and location of your HTC? How often do you visit it?
How did you learn how to infuse?
How does your bleeding disorder affect your daily life?
What would it mean to you if you couldn't access HTC care or the medications you take?
How much do you/your family pay in co-pays for your bleeding disorders treatments?
Do you or does someone you know rely on co-pay assistance?
Have you faced an accumulator adjuster or copay maximizer? What did that mean for your ability to refill your prescription? What did mean for your household finances?
Have you experienced or heard from community members about the particular challenges for women and girls with bleeding disorders?

2026 Washington Days

March 4-6, 2026