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Below are additional resources for those with bleeding disorders such as national organizations, tools, assistance, and other valuable aides for those living with a bleeding disorder.

Click the icons below to learn more and visit the page/resource.

Below are additional resources for those with bleeding disorders such as national organizations, tools, assistance, and other valuable aides for those living with a bleeding disorder.

Click the icons below to learn more and visit the page/resource.

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The National Bleeding Disorders Foundation (NBDF) is a nonprofit organization dedicated to finding better treatments and cures for inheritable blood disorders and to preventing the complications of these disorders through education nationally.

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Hemophilia Federation of America is a national nonprofit organization that assists and advocates for the bleeding disorders community.

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The World Federation of Hemophilia (WFH) is a not- for-profit organization working to improve and sustain treatment of people with hemophilia and other inherited bleeding disorders.

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NORD is a leading independent patient advocacy organization in the U.S. dedicated to improving the lives of individuals and families affected by rare diseases. NORD works alongside the FDA, NIH, and hundreds of patient organizations

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The Centers for Disease Control and Prevention (CDC) is the national public health agency of the United States.

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The Bleeding Disorders Substance Use & Mental Health Access Coalition (BD SUMHAC) is a national, multidisciplinary advocacy group dedicated to fighting for equitable, safe access to inpatient and residential mental health and substance use disorder (SUD) treatment for individuals with bleeding disorders.

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FreeWill is an online estate planning platform that allows users to create legally valid wills, advance healthcare directives, and powers of attorney for free.

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HepConnect was a five-year, multi-million-dollar initiative funded by Gilead Sciences to address the alarming rise of hepatitis C (HCV) infections linked to the opioid crisis.

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MedicAlert offers custom medical IDs + 24/7 live saving protection.

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By providing education of excellence and fostering collaboration between disciplines, they benefit women and girls in their need for earlier and accurate diagnoses and management of their blood disorders and accompanying reproductive challenges.

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HHS is responsible for public health, health care, and human/social services for the United States of America.

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Accessia Health is a national 501(c)(3) nonprofit organization that helps patients with rare and chronic medical conditions afford treatments.

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The Plasma Protein Therapeutics Association (PPTA) is a key player in the plasma industry, with an extensive network of human plasma collection centers and manufacturers.

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LA Kelley Communications, founded in 1990 by Laureen A. Kelley, is a publishing and educational company specializing exclusively in bleeding disorders like hemophilia and von Willebrand disease.

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This film documents the tragic history and facts surrounding the discovery of HIV in the U.S. blood supply in the early days of the AIDS epidemic. 

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This Handbook serves as a thorough guide for individuals navigating life with a bleeding disorder.

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Give an Hour is a national nonprofit organization that connects individuals and communities impacted by human-made trauma (such as military deployment, mass violence, and interpersonal violence) with free, barrier-free mental health counseling.

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Save One Life is an international nonprofit organization that provides direct financial assistance, scholarships, and micro-enterprise grants to children and adults living in developing countries who bear the double burden of poverty and a bleeding disorder.

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The CHES Foundation (Comprehensive Health Education Services) is a 501(c)(3) nonprofit dedicated to the bleeding disorder community, specializing in support for those with hemophilia, ultra-rare bleeding conditions, and inhibitor complications.

Microhealth was created by a person with severe Hemophilia A and a Columbia University researcher over 15 years ago. Microhealth is the most used app globally for people with bleeding disorders. Get reminders, track treatments, bleeds and physical activity. Share your progress with your care team and make better treatment decisions together. It's simple, secure and free. Download Today!

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