One Blood. One Family.
Advocacy
One of the main directives of TCBD is to support and encourage legislative advocacy for the bleeding disorders community. By actively meeting with and writing to our state and federal legislators, we can bring the important aspects that affect our community to the attention of our representatives. It takes the effort of each of us in our community to make our “voice” loud enough. TCBD participates in Washington Days (federal) and Austin Days (state).
NBDF's Washington Days is an annual advocacy event where people affected by bleeding disorders meet with lawmakers in Washington, D.C. to push for policies supporting patient access to care, research funding, and affordable treatments, transforming personal stories into powerful advocacy for critical healthcare issues.
We focus on access to affordable, quality treatments and healthcare that meet the needs of the bleeding disorders community at the federal level.
Austin Advocacy Days offers an opportunity for Texans affected by inherited blood disorders to advocate for important issues at the state level. Since the Texas Legislature meets biannually (every two years on the odd year), this event is crucial for engaging with lawmakers about the needs of the bleeding disorders community. Austin Advocacy Days will focus on state policies that enhance care affordability and coverage for Texans.
​On the state level, we advocate on issues surrounding insurance, Medicaid, and polices that can create barriers to access to care.​​​
Texas Central Bleeding Disorders is a member of the Texas Bleeding Disorders Advocacy Coalition (TXBDC). We advocate at the state and federal level on issues important to the bleeding disorders community. The Coalition is a joint effort of the Lone Star Chapter and Texas Central Bleeding Disorders. Learn more about the coalition at txbdcoalition.org.
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March is Bleeding Disorders Awareness Month!
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To find out who represents you, please go to: http://www.fyi.legis.state.tx.us/Home.aspx.
Please reach out to Julie Jones at julie@texcen.org, if you are located in the Northern part of Texas, and are interested in participating in either Advocacy Days.
Please reach out to Melissa Compton at mcompton@lonestarbleedingdisorders.org, if you are located in the Southern part of Texas, and are interested in participating in either Advocacy Days.
