Area Treatment Centers

Children's Hemophilia Treatment Centers

The University of Texas Southwestern Medical Center
Children's Medical Center of Dallas
North Texas Comprehensive Hemophilia Center
1935 Medical District Drive
Dallas, Texas
(214) 456-2379
Click for Map

Cook Children's Medical Center
Dept. of Hematology/Oncology
801 Seventh Street
Ft Worth, Texas 76104
(817) 885-4007
Click for Map


Adult Hemophilia Program

North Texas Comprehensive Hemophilia Center
Seay Biomedical Building
2201 Inwood Rd. (location)

5323 Harry Hines Blvd.
Dallas, TX 75390-8852
(214) 648-1937, Nurse Coordinator
(214) 648-5177, Social Worker
 

Bleeding Disorder Legal Hotline

The Bleeding Disorders Legal Hotline is open to people affected with a bleeding disorder and the medical professionals that provide care for them. Quite simply, the Hotline is designed to bridge the gap between the laws and the people who need to understand them. Call (800) 520-6154 and get informed.

This free, confidential phone line is manned by an attorney, Beth Sufian, in Houston, TX. She has over 17 years of experience helping people with chronic conditions understand the laws intended to protect them regarding health insurance and school/work issues. This Hotline was initiated by the Lone Star Chapter of the NHF in 2006. Hotline callers have reported that the information was helpful and would have been difficult to find without the help of this service. The Hotline can provide information on the issues listed below:

1. Obtaining and maintaining private health insurance.
2. Obtaining coverage from insurers for medical treatment.
3. How a small business can obtain health insurance.
4. Legal rights regarding Medicaid & Medicare.
5. Applying for Social Security benefits.
6. Appealing a denial of application for Social Security benefits.
7. Protection in the workplace from discrimination.
8. Family Medical Leave / Reasonable Accommodations in the workplace.
9. Insurance issues related to transitioning young adults.
10. Legal rights of children with medical conditions in the school setting.

This service is sponsored by Baxter. The Hotline is recognized by the National Hemophilia Foundation as a valuable resource to the bleeding disorders community.

Related Links

World Federation of Hemophilia - International federation dedicated to promoting the high standards of medical care for hemophiliacs.

National Hemophilia Foundation - NHF makes an important difference in the lives of people and families with bleeding disorders.

Hemophilia Federation of America - Advocacy organization established for the purpose of serving as a patient advocate for, but not limited to, product safety, treatment, insurance and quality of life issues in a positive and pro-active manner.

HepC Connection - A Hepatitis C network and support system located in Denver, Colorado.

patientnotificationsystem.org - Sign up for notification of factor/product recalls and other important up to date information regarding bleeding and clotting disorder medication alerts.

Sponsors

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The information contained on the Texas Central Hemophilia Association (TexCen) web site is provided for your general information only. TexCen does not give medical advice or engage in the practice of medicine. TexCen under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.