Area Treatment Centers

Children's Hemophilia Treatment Centers

The University of Texas Southwestern Medical Center
Children's Medical Center of Dallas
North Texas Comprehensive Hemophilia Center
1935 Medical District Drive
Dallas, Texas
(214) 456-2379
Click for Map

Cook Children's Medical Center
Dept. of Hematology/Oncology
801 Seventh Street
Ft Worth, Texas 76104
(817) 885-4007
Click for Map

Adult Hemophilia Program

North Texas Comprehensive Hemophilia Center
Seay Biomedical Building
2201 Inwood Rd. (location)

5323 Harry Hines Blvd.
Dallas, TX 75390-8852
(214) 648-1937, Nurse Coordinator
(214) 648-5177, Social Worker

Education Based Legislation for Children with Disabilities

Board member Shannon Brush has compiled some helpful information regarding legislation focused on the educational needs of children with disabilities. Download in PDF format by clicking here.

Medical Advisories

NHF's Medical and Scientific Advisory Council (MASAC).

Bleeding Disorder Legal Hotline

The Bleeding Disorders Legal Hotline is open to people affected with a bleeding disorder and the medical professionals that provide care for them. Quite simply, the Hotline is designed to bridge the gap between the laws and the people who need to understand them. Call (800) 520-6154 and get informed.

This free, confidential phone line is manned by an attorney, Beth Sufian, in Houston, TX. She has over 17 years of experience helping people with chronic conditions understand the laws intended to protect them regarding health insurance and school/work issues. This Hotline was initiated by the Lone Star Chapter of the NHF in 2006. Hotline callers have reported that the information was helpful and would have been difficult to find without the help of this service. The Hotline can provide information on the issues listed below:

1. Obtaining and maintaining private health insurance.
2. Obtaining coverage from insurers for medical treatment.
3. How a small business can obtain health insurance.
4. Legal rights regarding Medicaid & Medicare.
5. Applying for Social Security benefits.
6. Appealing a denial of application for Social Security benefits.
7. Protection in the workplace from discrimination.
8. Family Medical Leave / Reasonable Accommodations in the workplace.
9. Insurance issues related to transitioning young adults.
10. Legal rights of children with medical conditions in the school setting.

This service is sponsored by Baxter. The Hotline is recognized by the National Hemophilia Foundation as a valuable resource to the bleeding disorders community.

Related Links

World Federation of Hemophilia - International federation dedicated to promoting the high standards of medical care for hemophiliacs.

National Hemophilia Foundation - NHF makes an important difference in the lives of people and families with bleeding disorders.

Hemophilia Federation of America - Advocacy organization established for the purpose of serving as a patient advocate for, but not limited to, product safety, treatment, insurance and quality of life issues in a positive and pro-active manner.

HepC Connection - A Hepatitis C network and support system located in Denver, Colorado.

patientnotificationsystem.org - Sign up for notification of factor/product recalls and other important up to date information regarding bleeding and clotting disorder medication alerts.

LA Kelley Communications, Inc. - Provides tools and publications that speak to you, parent to parent, patient to patient, with the single goal of helping you master your world of bleeding disorders, plus other information like scholarships and community news.

Patient Services, Inc. (PSI) - Provides assistance with insurance premiums for qualifying individuals with chronic disorders.

Committee of Ten Thousand - A central theme of the COTT is the development and implementation of programmatic initiatives which illuminate an empowerment road map for the diverse communities impacted by HIV/AIDS and other chronic diseases/disorders.

medicalert.org - MedicAlert Foundation is a nonprofit organization providing 24-hour emergency medical information and identification service.

Bad Blood - A Cautionary Tale - A documentary film by Marilyn Ness - Through the eyes of survivors and family members, BAD BLOOD chronicles how a “miracle” treatment for hemophilia became an agent of death for 10,000 Americans.

Knight's Quest Ministries - Since 2001 Knights' Quest Ministries has conducted live seminars and events that equip parents, youth, leaders, churches, public school PTOs/PTAs, and other organizations with the practical skills to address how to prevent pornography and other adult material from infiltrating our our families through social media, game consoles, and smart phone technology.

NHF's Research Grants and Fellowships - NHF funds Career Development Awards for projects that would yield scientific information contributing to a cure for bleeding disorders such as hemophilia and von Willebrand disease.

NHF's Medical and Scientific Advisory Committee (MASAC) - In 1954, the National Hemophilia Foundation formed a medical advisory council to advance clinical care and promote hemophilia research.

UDC/ATHN, Patient Notification System - The industry-wide Patient Notification System informs people when a blood product is withdrawn or recalled.

NHF's Steps for Living - Steps for Living is your one-stop resource for information on bleeding disorders for kids, adolescents, parents and health educators to promote healthy living for the whole family.

NHF's Victory for Women - Victory for Women (V4W) is NHF’s health initiative to address the critical issues faced by women with bleeding disorders.