TexCen.org - Texas Central Hemophilia Association
2014 Hemophilia Walk
Join Our Team!
2014 DFW Hemophilia Walk
WHAT: The Hemophilia Walk is NHF’s largest event dedicated to finding better treatments and cures for bleeding and clotting disorders, and to preventing the complications of these disorders through awareness, education, advocacy and research.
WHY: Hemophilia is very rare. Fewer than 20,000 people in the United State have hemophilia. However, hemophilia is very, very expensive, often costing patients upwards of $250,000 a year for the medicines needed to help the blood clot normally. We are asking you to join our Texas Central Hemophilia Association “TexCen” team and to raise awareness and funds for local families.
WHEN: Saturday, November 8th, 2014
WHERE: Lone Star Park in Grand Prairie
Check-in begins at 8:30am / Walk begins at 10:00am
DISTANCE: 1 mile (short route) / 5k (3.1 miles long route)
HOW: Sign up to join our team online by visiting www.hemophilia.org/walk. Select the walk in TX (DFW) and join, register or donate.
VOLUNTEER: Help us make our event a success! Volunteers are appreciated before and/or during the Walk. As a non-profit, TexCen can also offer community service hours to anyone who volunteers.
HFA Choice Project
CHOICE (Community Having Opportunity to Influence Care Equity) is a project driven by Hemophilia Federation of America (HFA) and supported by the Centers for Disease Control and Prevention (CDC). CHOICE collects information through an online and paper-based survey.
This survey collects information regarding health experiences of people who have a doctor-diagnosed bleeding disorder and do not receive care at a federally-funded hemophilia treatment center (HTC). HFA's goal for the CHOICE Project is to put the survey results to work to improve the lives of those in the bleeding disorders community.
Welcome to TexCen.org!
Welcome to the Texas Central Hemophilia Association' s official website. Here, you will find a wealth of information and community knowledge which is of particular value to anyone who is affected by a bleeding or clotting disorder.
The mission of the Texas Central Hemophilia Association ("TexCen"), a non-profit corporation, is to promote advocacy among people and families with bleeding and clotting disorders, to support efforts for finding a cure for these disorders, to promote awareness within the general public, and to provide a support network for those affected by a bleeding or clotting disorder.
Please note any upcoming events. We invite all to attend these activities and become involved in a community devoted to helping one another. The activities are always fun and educational. They also provide a fantastic opportunity for meeting and learning from others who are affected by a bleeding or clotting disorder. In addition, TexCen Board Meetings are always open for anyone to attend.
TexCen is always in need of volunteers and donations to continue providing these important services and opportunities to the bleeding disorders community. We invite you to get involved and have fun.