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TexCen.org - Texas Central Hemophilia Association

2014 Texas Bleeding Disorders Conference

Bigger and Better Than Ever!

The Texas Bleeding Disorders Conference will be held on August 8-10th. This year’s conference will have more content than ever before – important information for individuals and families with bleeding disorders. We will start the weekend out with receptions to enable community members to connect with others. Join us from 3:00 to 5:00 on Friday August 8th – New Families, Camp Ailihpomeh Reunion, Texas Bleeding Disorders Coalition, Blood Brotherhood, Spanish Speaking, Women and Girls and Teens. We have an amazing weekend planned for our children and teens with programming specifically geared towards their age group and interests. Our plan is to keep them engaged and entertained all weekend so our parents can learn and connect in a relaxed atmosphere.

We have both NHF and HFA participating along with incredible National Speakers like Laurie Kelley. Additionally we will have HTC medical staff participating in many of our sessions. Saturday afternoon is reserved for more in-depth education with breakouts geared specifically towards individuals’ needs: New Families, Experienced Families, Women-Girls-Carriers, Men and vWD, Inhibitors, Spanish Speaking, Advocacy and Men’s programming.

Lone Star and TexCen will be getting our community fired up about our upcoming Walks in the Fall – “Everything is Bigger in Texas”! Our Saturday night event is sure to be a crowd pleaser which enables our folks to kick back and enjoy each other as we make new friends and celebrate old ones! Sunday morning programming continues – all about Insurance – what you need to know, current issues and trends. Space is limited but it is not too late to register – go to www.lonestarhemophilia.org to download registration materials. We still have a few scholarships available for families who have never attended the conference! Hope to see you there!

 

HFA Choice Project

CHOICE (Community Having Opportunity to Influence Care Equity) is a project driven by Hemophilia Federation of America (HFA) and supported by the Centers for Disease Control and Prevention (CDC). CHOICE collects information through an online and paper-based survey.

This survey collects information regarding health experiences of people who have a doctor-diagnosed bleeding disorder and do not receive care at a federally-funded hemophilia treatment center (HTC). HFA's goal for the CHOICE Project is to put the survey results to work to improve the lives of those in the bleeding disorders community.

Read More and Take The CHOICE Survey Online

 

Welcome to TexCen.org!

Welcome to the Texas Central Hemophilia Association' s official website. Here, you will find a wealth of information and community knowledge which is of particular value to anyone who is affected by a bleeding or clotting disorder.

The mission of the Texas Central Hemophilia Association ("TexCen"), a non-profit corporation, is to promote advocacy among people and families with bleeding and clotting disorders, to support efforts for finding a cure for these disorders, to promote awareness within the general public, and to provide a support network for those affected by a bleeding or clotting disorder.

Please note any upcoming events. We invite all to attend these activities and become involved in a community devoted to helping one another. The activities are always fun and educational. They also provide a fantastic opportunity for meeting and learning from others who are affected by a bleeding or clotting disorder. In addition, TexCen Board Meetings are always open for anyone to attend.

TexCen is always in need of volunteers and donations to continue providing these important services and opportunities to the bleeding disorders community. We invite you to get involved and have fun.

 
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The information contained on the Texas Central Hemophilia Association (TexCen.org) web site is provided for your general information only. TexCen does not give medical advice or engage in the practice of medicine. TexCen under no circumstances recommends particular treatment for specific individuals and in all cases recommends that you consult your physician or local treatment center before pursuing any course of treatment.

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