TexCen.org - Texas Central Hemophilia Association
2014 Texas Bleeding Disorders Conference
Bigger and Better Than Ever!
The Texas Bleeding Disorders Conference will be held on August 8-10th. This year’s conference will have more content than ever before – important information for individuals and families with bleeding disorders. We will start the weekend out with receptions to enable community members to connect with others. Join us from 3:00 to 5:00 on Friday August 8th – New Families, Camp Ailihpomeh Reunion, Texas Bleeding Disorders Coalition, Blood Brotherhood, Spanish Speaking, Women and Girls and Teens. We have an amazing weekend planned for our children and teens with programming specifically geared towards their age group and interests. Our plan is to keep them engaged and entertained all weekend so our parents can learn and connect in a relaxed atmosphere.
We have both NHF and HFA participating along with incredible National Speakers like Laurie Kelley. Additionally we will have HTC medical staff participating in many of our sessions. Saturday afternoon is reserved for more in-depth education with breakouts geared specifically towards individuals’ needs: New Families, Experienced Families, Women-Girls-Carriers, Men and vWD, Inhibitors, Spanish Speaking, Advocacy and Men’s programming.
Lone Star and TexCen will be getting our community fired up about our upcoming Walks in the Fall – “Everything is Bigger in Texas”! Our Saturday night event is sure to be a crowd pleaser which enables our folks to kick back and enjoy each other as we make new friends and celebrate old ones! Sunday morning programming continues – all about Insurance – what you need to know, current issues and trends. Space is limited but it is not too late to register – go to www.lonestarhemophilia.org to download registration materials. We still have a few scholarships available for families who have never attended the conference! Hope to see you there!
HFA Choice Project
CHOICE (Community Having Opportunity to Influence Care Equity) is a project driven by Hemophilia Federation of America (HFA) and supported by the Centers for Disease Control and Prevention (CDC). CHOICE collects information through an online and paper-based survey.
This survey collects information regarding health experiences of people who have a doctor-diagnosed bleeding disorder and do not receive care at a federally-funded hemophilia treatment center (HTC). HFA's goal for the CHOICE Project is to put the survey results to work to improve the lives of those in the bleeding disorders community.
Welcome to TexCen.org!
Welcome to the Texas Central Hemophilia Association' s official website. Here, you will find a wealth of information and community knowledge which is of particular value to anyone who is affected by a bleeding or clotting disorder.
The mission of the Texas Central Hemophilia Association ("TexCen"), a non-profit corporation, is to promote advocacy among people and families with bleeding and clotting disorders, to support efforts for finding a cure for these disorders, to promote awareness within the general public, and to provide a support network for those affected by a bleeding or clotting disorder.
Please note any upcoming events. We invite all to attend these activities and become involved in a community devoted to helping one another. The activities are always fun and educational. They also provide a fantastic opportunity for meeting and learning from others who are affected by a bleeding or clotting disorder. In addition, TexCen Board Meetings are always open for anyone to attend.
TexCen is always in need of volunteers and donations to continue providing these important services and opportunities to the bleeding disorders community. We invite you to get involved and have fun.
2014 Annual Meeting & Education Day
2014 Annual Meeting and Education Day Saturday, June 21st - 9:00 am – 2:30 pm Texas Motor Speedway 3545 Lone Star Circle Fort Worth, TX 76177 Schedule of Events 9:00...Read More...